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My NF1 Story | 
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My NF1 Story I have nf1. When I was 18 I had my right leg amputated from the hip. My site also tells of how I cope with a prosthesis.
This is a site dedicated to my son, Dakota (3 as of Aug 2000), who was diagnosed with NF1. He has seizures which accompany it. We are committed to finding a cure, and we are trying to raise $10,000 for NF research by participating in the Race for a Cure marathon at Disney World. We will do this each year until there is a cure! Our website has links to otehr pages and info on nf and our little angel living with it.
This is a my site where I am thanking Gillian Anderson for her effect on my life. Instead of sending her a present I decided to dedicate a site to her that promoted the causes and charities that she, herself, supports.
Neurofibromatosis Community This community promotes Neurofibromatosis education, enlightenment, and encouragement. It is open to NF organizations, medical sites, and personal homepages. Sites pertaining to all aspects of NF-1 and NF-2 are welcome, including associated conditions such learning disabilities, scoliosis, epilepsy, acoustic neuroma, cancer, deafness, blindness, etc. NF information is too scarce, and public awareness is practically non-existent. Let's get together and make ourselves known! {;}
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