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My Angel with NF | 
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My Angel with NF This is a site dedicated to my son, Dakota (3 as of Aug 2000), who was diagnosed with NF1. He has seizures which accompany it. We are committed to finding a cure, and we are trying to raise $10,000 for NF research by participating in the Race for a Cure marathon at Disney World. We will do this each year until there is a cure! Our website has links to otehr pages and info on nf and our little angel living with it.
A support group for those who suffer from and or a family member or friend of Chiari Malformation and its related disorders. We offer support, education and awareness.
I have nf1. When I was 18 I had my right leg amputated from the hip. My site also tells of how I cope with a prosthesis.
Neurofibromatosis Community This community promotes Neurofibromatosis education, enlightenment, and encouragement. It is open to NF organizations, medical sites, and personal homepages. Sites pertaining to all aspects of NF-1 and NF-2 are welcome, including associated conditions such learning disabilities, scoliosis, epilepsy, acoustic neuroma, cancer, deafness, blindness, etc. NF information is too scarce, and public awareness is practically non-existent. Let's get together and make ourselves known! {;}
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