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Neurofibromatosis Community
Kirsty's Story

     




 



Kirsty's Story
Kirsty’s story. This story is about my life to date, I have the genetic conduction Neurofibromatosis and Scoliosis, This site is to help others with the same conduction.

Reviewed links to understandable information about NF1 and NF2 and associated conditions, including acoustic neuroma, learning disabilities, scoliosis, epilepsy, cancer, and more. Support resources and personal stories. A rare opportunity to view photos of neurofibroma tumors, cafe au lait spots, and other indicators of NF.{;}{;}Also home to the NF bulletin board

A support group for those who suffer from and or a family member or friend of Chiari Malformation and its related disorders. We offer support, education and awareness.

Neurofibromatosis Community
This community promotes Neurofibromatosis education, enlightenment, and encouragement. It is open to NF organizations, medical sites, and personal homepages. Sites pertaining to all aspects of NF-1 and NF-2 are welcome, including associated conditions such learning disabilities, scoliosis, epilepsy, acoustic neuroma, cancer, deafness, blindness, etc. NF information is too scarce, and public awareness is practically non-existent. Let's get together and make ourselves known! {;}