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Our Beloved Son My son has TOF and this site describes that experience from my point of view as his mom.
Millie was in the hospital for 9 days, she got released yesterday. She was at Children's{;} Hospital and Medical Center in Seattle. I spent the entire week staying with her. It feels{;} good to be home. Our Christmas lights are still up and I have not put away my Christmas{;} presents yet. The three weeks since Millie was born have been a blur! First the 3 day labor{;} then getting released from the hospital when I was too sore to take care of just myself. Then{;} the bout with Jaundice, then Christmas when I was too sore to leave the house. Then the power{;} went out for 4 days. Then Millie quit eating right so we took her to the pediatrition and she{;} was diagnosed with Congestive Heart Failure. Then the ambulance ride to Mary Bridge{;} hospital. Then another ambulance ride to Childrens hospital. Then heart surgery and a 6 day{;} stay in Seattle. Now I have to give her digitalis and other medicines twice a day and she is{;} going to have open heart surgery as soon as she is big and strong enough.
Heather Mae Bonham was born on January 13, 1991, it was the happiest day of our lives. To see this beautiful baby girl that we had wanted and longed for finally arrive into our lives. Heather weighed in at 8 LBS. 1 OZ and we were told that she was perfect. Well our world came crashing all around us the very next day when this miricle was diagnosed with a very serious Congenital Heart Defect known as "Tetrology of Fallot".
* Congenital Heart Disease Community * Personal websites about congenital heart{;}defects. Congenital Heart disease affects one in one hundred babies, it is the most common birth defect. Read our heart warming stories. Watch our children grow up. Most of our children are living and doing well, but many have lost their battle with CHD..
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