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Jacob Anthony Pardee -HLHS

     

 



Jacob Anthony Pardee -HLHS
Hypoplastic Left Heart Defect

My daughter, Sadie, was born on May 15, 1995. She was a full-term, good-sized baby (8lb.,1oz.). Because of a{;} difficult 36 hour labor her apgar scores were low and they monitored her closely in the beginning. They told us{;} she had a heart murmur and they did a chest x-ray and EKG. They couldn't find anything wrong (!) and{;} decided to let us go home the next day, telling us to have the murmur checked again soon. We went home{;} after the doctor told us that many babies are born with murmurs that go away soon after birth. Well, it didn't{;} go away so we made an appointment with a cardiologist. Like most parents, I never thought I would have a{;} child with a heart defect, so I wasn't too nervous about our appointment. Besides, Sadie seemed in great{;} health. How could anything be wrong with my perfect child?

Our child Alex Matt Croft was born on the 25 December 1997, on the 26 December{;} he was diagnosed as having pulmonary stenosis and ebsteins anomaly. on the 31{;} December he underwent a cardiac catheterization procedure, due to the size of the{;} hole in the pulmonary valve it took 5 hours to find and the dilation of the valve took{;} a further 3 hours. due to the length of time under general anesthesia his kidneys{;} failed and his left lung deflated,after the procedure Alex spent 16 days in intensive{;} care. he was unable to breathe for himself and therefore he was ventilated, with his{;} kidneys failing he also underwent dialysis treatment but thankfully pulled through.{;} another two weeks were spent on a cardiac ward before he was allowed home. he{;} has now settled into his new surroundings and he is loved immensely. we owe{;} everything to the care and diligence to alder Hey hospital, Liverpool, England.

* Congenital Heart Disease Community *
Personal websites about congenital heart{;}defects. Congenital Heart disease affects one in one hundred babies, it is the most common birth defect. Read our heart warming stories. Watch our children grow up. Most of our children are living and doing well, but many have lost their battle with CHD..