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Benjamin's Hope This site is dedicated to my son, Benjamin John, who lost his battle with HLHS at the age of 25 months. He was doing super and was awaiting the fontan, when he died suddenly due to a blood clot. For those of you just beginning this journey, there is always hope. Give your child a chance.
Story of James Peter Crisp born in Melbourne with HLHS 2000.{;}James has now had all 3 surgeries
Share our story, pictures and memories of our precious daughter, Natalie, who died on her 6th day with HLHS. And before leaving, please check out the page of links, there are many that will direct you to places for guidance, support, information. Don't forget to sign the guestbook on your way out, and please contact me if I can help you in any other way.{;}
Hypoplastic Left Heart Syndrome This community is for families affected by HLHS. Surfing this community allows you to read about this Congenital Heart Defect, and how it has affected families all over the world.
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