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Infantile Refsum Disease
Sarah

     




 



Sarah
This site is about my daughter, Sarah, who was born with Infantile Refsum Disease.

My son, Zane.

This site is about my son, Cameron, born with a peroxisomal disorder.

Infantile Refsum Disease
This is a community for those families affected by Infantile Refsum Disease, or any other peroxisomal biogenesis disorder.