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Chiari Malformation and Related Disorders Support | 
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Chiari Malformation and Related Disorders Support A support group for those who suffer from and or a family member or friend of Chiari Malformation and its related disorders. We offer support, education and awareness.
Kirsty’s story. This story is about my life to date, I have the genetic conduction Neurofibromatosis and Scoliosis, This site is to help others with the same conduction.
This is a site dedicated to my son, Dakota (3 as of Aug 2000), who was diagnosed with NF1. He has seizures which accompany it. We are committed to finding a cure, and we are trying to raise $10,000 for NF research by participating in the Race for a Cure marathon at Disney World. We will do this each year until there is a cure! Our website has links to otehr pages and info on nf and our little angel living with it.
Neurofibromatosis Community This community promotes Neurofibromatosis education, enlightenment, and encouragement. It is open to NF organizations, medical sites, and personal homepages. Sites pertaining to all aspects of NF-1 and NF-2 are welcome, including associated conditions such learning disabilities, scoliosis, epilepsy, acoustic neuroma, cancer, deafness, blindness, etc. NF information is too scarce, and public awareness is practically non-existent. Let's get together and make ourselves known! {;}
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