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Click Member link to see site in tvNeurofibromatosis Community + ADD YOUR SITE (11 members)
This community promotes Neurofibromatosis education, enlightenment, and encouragement. It is open to NF organizations, medical sites, and personal homepages. Sites pertaining to all aspects of NF-1 and NF-2 are welcome, including associated conditions such learning disabilities, scoliosis, epilepsy, acoustic neuroma, cancer, deafness, blindness, etc. NF information is too scarce, and public awareness is practically non-existent. Let's get together and make ourselves known! {;}

My Angel with NF
This is a site dedicated to my son, Dakota (3 as of Aug 2000), who was diagnosed with NF1. He has seizures which accompany it. We are committed to finding a cure, and we are trying to raise $10,000 for ...

My NF1 Story
I have nf1. When I was 18 I had my right leg amputated from the hip. My site also tells of how I cope with a prosthesis.

CGA - Online
This is a my site where I am thanking Gillian Anderson for her effect on my life. Instead of sending her a present I decided to dedicate a site to her that promoted the causes and charities that she, herself, ...

My NF Page
This site is about Neurofibromatosis. Read my story and stories about some of my friends with NF.

Neurofibromatosis 1
My site has information about the symptoms and problems that go along with Neurofibromatosis 1. It is dedicated to my 4yr old son Max who you can read about.

Neurinoma do acustico (Brasil)
My site is the first one in portuguese that talk about acostic neuroma and NF2.{;}I would like to person can change historis and experiences.{;}This site is no tecnical is just to help person to know more ...

Neurofibromatosis in Russia
neurofibromatosis - genetic desease,{;}effects: NF-1, NF-2

Neurofibromatosis Society of Ontario
The Neurofibromatosis Society of Ontario is a non profit volunteer run organization hoping to provide support to NF families and foster a global awareness through public education and funding of NF re ...

Neurofibromatosis Resources
Reviewed links to understandable information about NF1 and NF2 and associated conditions, including acoustic neuroma, learning disabilities, scoliosis, epilepsy, cancer, and more. Support resources and ...

Kirsty's Story
Kirsty’s story. This story is about my life to date, I have the genetic conduction Neurofibromatosis and Scoliosis, This site is to help others with the same conduction.

Chiari Malformation and Related Disorders Support
A support group for those who suffer from and or a family member or friend of Chiari Malformation and its related disorders. We offer support, education and awareness.





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