RING DESCRIPTION: This ring promotes Neurofibromatosis education, enlightenment, and encouragement. It is open to NF organizations, medical sites, and personal homepages. Sites pertaining to all aspects of NF-1 and NF-2 are welcome, including associated conditions such learning disabilities, scoliosis, epilepsy, acoustic neuroma, cancer, deafness, blindness, etc. NF information is too scarce, and public awareness is practically non-existent. Let's get together and make ourselves known! {;}
Please click one of the links below to enter the RingSurf Viewer. JOIN RING NOWMy Angel with NFThis is a site dedicated to my son, Dakota (3 as of Aug 2000), who was diagnosed with NF1. He has seizures which accompany it. We are committed to finding a cure, and we are trying to raise $10,000 for NF research by participating in the Race for a Cure marathon at Disney World. We will do this each year until there is a cure! Our website has links to otehr pages and info on nf and our little angel living with it.
My NF1 StoryI have nf1. When I was 18 I had my right leg amputated from the hip. My site also tells of how I cope with a prosthesis.
CGA - OnlineThis is a my site where I am thanking Gillian Anderson for her effect on my life. Instead of sending her a present I decided to dedicate a site to her that promoted the causes and charities that she, herself, supports.
My NF PageThis site is about Neurofibromatosis. Read my story and stories about some of my friends with NF.
Neurofibromatosis 1My site has information about the symptoms and problems that go along with Neurofibromatosis 1. It is dedicated to my 4yr old son Max who you can read about.
Neurinoma do acustico (Brasil)My site is the first one in portuguese that talk about acostic neuroma and NF2.{;}I would like to person can change historis and experiences.{;}This site is no tecnical is just to help person to know more about NF2 and acostic neuroma.{;}I do this with the Unibanco (The most important bank of Brasil) and we are building and we hope to finish this project in nest year.
Neurofibromatosis in Russianeurofibromatosis - genetic desease,{;}effects: NF-1, NF-2
Neurofibromatosis Society of OntarioThe Neurofibromatosis Society of Ontario is a non profit volunteer run organization hoping to provide support to NF families and foster a global awareness through public education and funding of NF research.
Neurofibromatosis ResourcesReviewed links to understandable information about NF1 and NF2 and associated conditions, including acoustic neuroma, learning disabilities, scoliosis, epilepsy, cancer, and more. Support resources and personal stories. A rare opportunity to view photos of neurofibroma tumors, cafe au lait spots, and other indicators of NF.{;}{;}Also home to the NF bulletin board
Kirsty's StoryKirsty’s story. This story is about my life to date, I have the genetic conduction Neurofibromatosis and Scoliosis, This site is to help others with the same conduction.
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