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* Congenital Heart Disease Webring *
 
 

* Congenital Heart Disease Webring *





RING DESCRIPTION: Personal websites about congenital heart{;}defects. Congenital Heart disease affects one in one hundred babies, it is the most common birth defect. Read our heart warming stories. Watch our children grow up. Most of our children are living and doing well, but many have lost their battle with CHD..


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pulmonary stenosis and ebsteins anomaly
Our child Alex Matt Croft was born on the 25 December 1997, on the 26 December{;} he was diagnosed as having pulmonary stenosis and ebsteins anomaly. on the 31{;} December he underwent a cardiac catheterization procedure, due to the size of the{;} hole in the pulmonary valve it took 5 hours to find and the dilation of the valve took{;} a further 3 hours. due to the length of time under general anesthesia his kidneys{;} failed and his left lung deflated,after the procedure Alex spent 16 days in intensive{;} care. he was unable to breathe for himself and therefore he was ventilated, with his{;} kidneys failing he also underwent dialysis treatment but thankfully pulled through.{;} another two weeks were spent on a cardiac ward before he was allowed home. he{;} has now settled into his new surroundings and he is loved immensely. we owe{;} everything to the care and diligence to alder Hey hospital, Liverpool, England.

HeartLine Association
We are the HeartLine Association, a UK charity supporting children with congenital heart disease and their families.{;}On-line quarterly magazine, message board, links, guest book.

Hearts of Hope
Hearts of Hope is a web site dedicated to children born with Hypoplastic Left Heart Syndrome. Most of our stories are from Austalia but we have others from around the world{;}

Lady Irene's Camelot
Everything Irish, plus my family's pages. Also, I'm writing from my journal regarding raising my child with Down Syndrome. It's a work in progress. There's also genealogy, history and more.

James Page
{;}James is an Aussie HLHS survivor born on the 3rd of October 2000. James has had all 3 of his surgeries now and doing very well.

Joey's Heart
This webpage tells the story of my son's treatment for a congenital heart defect known as subaortic stenosis. It also is to promote congenital heart defects awareness

The Association for Children with Heart Disorders
The Association for Children With Heart Disorders (TACHD) gives advice and support to parents who have, or have had, children with cardiac disorders.

Our Little Angel
This site is dedicated to my grandson, Keaton Christopher Pittman who was born with HPLHS. He lived 3 1/2 weeks after having the Norwood.

Josiah's Heart Page
Story of Josiah's birth and struggle with CHD{;}

Finn and Breana's Adventures.
Finn and Breana, twins, were born the 9th of December 2000.{;}{;}This is the story of their lives so far and includes such adventures as, being born 8 weeks early, congenital heart defects, heart surgery#1, #2 and many more exciting adventures.

CongenitalHeartDefects.com
Information and support for the world-wide CHD community{;}

Ryan's Special Heart
A family webpage that celebrates the lives of the Smith children, Jake, Ryan and Shea as well as the experiences Ryan has had being born with TGA, a congenital heart defect that almost took his life as an infant.{;}

Elyse's Website
The purpose of this site is to share our experience and let you know you are not alone. If you keep the faith, this ordeal will end before you know it. If you believe in God, have faith, if you don't believe in God, then have faith in the professionals who will help your baby!

Kirsty Noelle
In about the 20th week of my pregnacy the Dr's discovered that the right side of my baby's heart was too small. When I heard those words my heart broke. Almost instantly I had a million questions. Will she live? What can you do to help her? Did I cause this somehow? After several more tests they told me that with 3 operations she could be fine. {;}

Hi my name is Kim Hancock and I was born
Hi my name is Kim Hancock and I was born{;} with T.G.A.(transposition of the great{;} arteries) I had open heart surgery when i{;} was born and many after that, the final one{;} I had was when I was 2 years old. I go for{;} check up every year in Toronto, Ontario at{;} the Toronto General Hospital. I was told{;} that I had rhythm problem at one of my{;} yearly check ups. Its went away by the{;} next check up, and has been fine since, I{;} am now 20 years old and gave birth to a{;} Healthy Baby Girl on October 22, 1998.

***** Millie! The CHD Webring POSTER CHILD!!! ******
Millie was in the hospital for 9 days, she got released yesterday. She was at Children's{;} Hospital and Medical Center in Seattle. I spent the entire week staying with her. It feels{;} good to be home. Our Christmas lights are still up and I have not put away my Christmas{;} presents yet. The three weeks since Millie was born have been a blur! First the 3 day labor{;} then getting released from the hospital when I was too sore to take care of just myself. Then{;} the bout with Jaundice, then Christmas when I was too sore to leave the house. Then the power{;} went out for 4 days. Then Millie quit eating right so we took her to the pediatrition and she{;} was diagnosed with Congestive Heart Failure. Then the ambulance ride to Mary Bridge{;} hospital. Then another ambulance ride to Childrens hospital. Then heart surgery and a 6 day{;} stay in Seattle. Now I have to give her digitalis and other medicines twice a day and she is{;} going to have open heart surgery as soon as she is big and strong enough.

Our Beloved Son
My son has TOF and this site describes that experience from my point of view as his mom.

Heather
Heather Mae Bonham was born on January 13, 1991, it was the happiest day of our lives. To see this beautiful baby girl that we had wanted and longed for finally arrive into our lives. Heather weighed in at 8 LBS. 1 OZ and we were told that she was perfect. Well our world came crashing all around us the very next day when this miricle was diagnosed with a very serious Congenital Heart Defect known as "Tetrology of Fallot".

Zachary's Zoo
The story of our son Zachary who was born 3/10/98 with a variety of complex congenital heart defects. He completed his three surgeries at the University of Michigan Medical Center by Dr. Edward Bove. A happy story filled with hope!

Congenital Heart Defects Webring
This is the home page for the CHD webring at ringsurf. Visit this page to{;}add your site or edit your site. See the latest news and the ring statistics here. Get help from the ring master here too.{;}{;}Best of all come visit Millie and see how well she is doing.

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