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* Congenital Heart Disease Community * + ADD YOUR SITE (67 members)
Personal websites about congenital heart{;}defects. Congenital Heart disease affects one in one hundred babies, it is the most common birth defect. Read our heart warming stories. Watch our children grow up. Most of our children are living and doing well, but many have lost their battle with CHD..

Jessica Faith Taylor (HLHS)
Jessica Faith Taylor\'s story and news. Jessica is a newborn with Hypoplastic Left Heart Syndrome (HLHS) and this site is dedicated to keeping friends and family updated on her progress and give hope to other families with the same or similiar diagnosis.

All about Sam
Our 4 month old boy undergoes open-heart surgery at Johns Hopkins Hospital to repair a large heart defect. (VSD)

Three Hearts
The story of three siblings with CHD (TAPVR, PAPVR, ASD & VSD.)

Mason's Heart
Monthly updates on my grandson who was born with HLHS. Daily life of a child with HLHS{;}

Jeffrey's story - Hypoplastic Left Heart Syndrome
Jeffrey was born with a congenital heart defect called HLHS (Hypoplastic Left Heart Syndrome). If you've recently learned of your child having the same heart defect, know that there is hope for HLHS and that you're not alone.

Our Cottage & David's Heart
Our family site with information on David and his life with Tetrology of Fallot. Our site also has recipes, crafts, poems, and more.

Special Hearts Graphics
Dedicated to families living with Congenital Heart Defects, this site has graphics designed for use on personal home pages and not for profit sites with CHD in heart and mind.

Trevor's Site
i! Our names are Michael and Laurie Beard. We have two daughters, Heather{;} 14 and Brianna 7. We tried for a long time to have a son, and finally our prayers{;} were answered on August 23, 1996. Our son, Trevor Colt Beard, was born!{;} When Trevor was born via C section, we knew that something was wrong{;} because he was rushed out of the room to the nursery. The docs told us that he{;} had swallowed some fluids ducommunity birth so was having trouble breathing. We were{;} concerned, but not overly. A few hours later our world turned upside down when{;} our pediatrician advised us that Trevor had Down Syndrome.

Sadie HLHS
My daughter, Sadie, was born on May 15, 1995. She was a full-term, good-sized baby (8lb.,1oz.). Because of a{;} difficult 36 hour labor her apgar scores were low and they monitored her closely in the beginning. They told us{;} she had a heart murmur and they did a chest x-ray and EKG. They couldn't find anything wrong (!) and{;} decided to let us go home the next day, telling us to have the murmur checked again soon. We went home{;} after the doctor told us that many babies are born with murmurs that go away soon after birth. Well, it didn't{;} go away so we made an appointment with a cardiologist. Like most parents, I never thought I would have a{;} child with a heart defect, so I wasn't too nervous about our appointment. Besides, Sadie seemed in great{;} health. How could anything be wrong with my perfect child?

Jacob Anthony Pardee -HLHS
Hypoplastic Left Heart Defect

pulmonary stenosis and ebsteins anomaly
Our child Alex Matt Croft was born on the 25 December 1997, on the 26 December{;} he was diagnosed as having pulmonary stenosis and ebsteins anomaly. on the 31{;} December he underwent a cardiac catheterization procedure, due to the size of the{;} hole in the pulmonary valve it took 5 hours to find and the dilation of the valve took{;} a further 3 hours. due to the length of time under general anesthesia his kidneys{;} failed and his left lung deflated,after the procedure Alex spent 16 days in intensive{;} care. he was unable to breathe for himself and therefore he was ventilated, with his{;} kidneys failing he also underwent dialysis treatment but thankfully pulled through.{;} another two weeks were spent on a cardiac ward before he was allowed home. he{;} has now settled into his new surroundings and he is loved immensely. we owe{;} everything to the care and diligence to alder Hey hospital, Liverpool, England.

HeartLine Association
We are the HeartLine Association, a UK charity supporting children with congenital heart disease and their families.{;}On-line quarterly magazine, message board, links, guest book.

Hearts of Hope
Hearts of Hope is a web site dedicated to children born with Hypoplastic Left Heart Syndrome. Most of our stories are from Austalia but we have others from around the world{;}

Lady Irene's Camelot
Everything Irish, plus my family's pages. Also, I'm writing from my journal regarding raising my child with Down Syndrome. It's a work in progress. There's also genealogy, history and more.

James Page
{;}James is an Aussie HLHS survivor born on the 3rd of October 2000. James has had all 3 of his surgeries now and doing very well.

Joey's Heart
This webpage tells the story of my son's treatment for a congenital heart defect known as subaortic stenosis. It also is to promote congenital heart defects awareness

The Association for Children with Heart Disorders
The Association for Children With Heart Disorders (TACHD) gives advice and support to parents who have, or have had, children with cardiac disorders.

Our Little Angel
This site is dedicated to my grandson, Keaton Christopher Pittman who was born with HPLHS. He lived 3 1/2 weeks after having the Norwood.

Josiah's Heart Page
Story of Josiah's birth and struggle with CHD{;}

Finn and Breana's Adventures.
Finn and Breana, twins, were born the 9th of December 2000.{;}{;}This is the story of their lives so far and includes such adventures as, being born 8 weeks early, congenital heart defects, heart surgery#1, #2 and many more exciting adventures.

CongenitalHeartDefects.com
Information and support for the world-wide CHD community{;}

Ryan's Special Heart
A family webpage that celebrates the lives of the Smith children, Jake, Ryan and Shea as well as the experiences Ryan has had being born with TGA, a congenital heart defect that almost took his life as an infant.{;}

Elyse's Website
The purpose of this site is to share our experience and let you know you are not alone. If you keep the faith, this ordeal will end before you know it. If you believe in God, have faith, if you don't believe in God, then have faith in the professionals who will help your baby!

Kirsty Noelle
In about the 20th week of my pregnacy the Dr's discovered that the right side of my baby's heart was too small. When I heard those words my heart broke. Almost instantly I had a million questions. Will she live? What can you do to help her? Did I cause this somehow? After several more tests they told me that with 3 operations she could be fine. {;}

Hi my name is Kim Hancock and I was born
Hi my name is Kim Hancock and I was born{;} with T.G.A.(transposition of the great{;} arteries) I had open heart surgery when i{;} was born and many after that, the final one{;} I had was when I was 2 years old. I go for{;} check up every year in Toronto, Ontario at{;} the Toronto General Hospital. I was told{;} that I had rhythm problem at one of my{;} yearly check ups. Its went away by the{;} next check up, and has been fine since, I{;} am now 20 years old and gave birth to a{;} Healthy Baby Girl on October 22, 1998.